Here's a quick update on Jackson. Most of you know we've been getting second opinions regarding Jackson's Torticollis (stiff neck), Plagiocephaly (misshapen head) http://www.maryfreebed.com/media/asktheexpert_torticollis.pdf, and Cephalahematoma (bump on his head) http://www.drhull.com/EncyMaster/C/cephalohematoma.html. We met with a member of the helmet team at Mary Freebed Rehab Hospital last week. They did a light scan on his head and examined his head. He decided a helmet was NOT necessary, though his head is not perfectly shaped (he's human, thank God!). We saw a team of therapists (OT and PT) from the Torticollis Program at Mary Freebed this week. They gave us a LOT of exercises/activities we can do with Jackson to create more of a "structured" and "developmental" play session. They are going to begin an intense (most likely brief) program of therapy with him (2 times a week for 5-10 weeks). They complimented him on his ability to learn. We had to actually ASK our pediatrician for a referral to this program because he did not think Jackson seemed like he needed additional treatment (while Jackson's "abnormalities" are quite mild we are glad we have resources such as these available in West Michigan). The therapists were fantastic and very thorough at evaluating Jackson (and he loved working with them - he didn't even cry, well, not until the end - he had about an hour workout! baby Pilate's :) Our next consultation is with a Craniofacial Surgeon (if you're thinking of a career change, this one must be in high demand as we only found 2 in Grand Rapids, neither of which is in our network - expensive second opinion for us, but priceless in the eyes of parents). This evaluation will be for his hematoma that has calcified (according to our pediatrician this hematoma is harmless). By no means are we complaining about any of Jackson's minor "issues." We are so blessed to have such a healthy baby - we really see how BLESSED we are when we see others with much larger disabilities, abnormalities, etc. We praise God for all he's given us as we PRAY for others going through struggles in life.
Wednesday, November 7, 2007
Two down, one to go!
Here's a quick update on Jackson. Most of you know we've been getting second opinions regarding Jackson's Torticollis (stiff neck), Plagiocephaly (misshapen head) http://www.maryfreebed.com/media/asktheexpert_torticollis.pdf, and Cephalahematoma (bump on his head) http://www.drhull.com/EncyMaster/C/cephalohematoma.html. We met with a member of the helmet team at Mary Freebed Rehab Hospital last week. They did a light scan on his head and examined his head. He decided a helmet was NOT necessary, though his head is not perfectly shaped (he's human, thank God!). We saw a team of therapists (OT and PT) from the Torticollis Program at Mary Freebed this week. They gave us a LOT of exercises/activities we can do with Jackson to create more of a "structured" and "developmental" play session. They are going to begin an intense (most likely brief) program of therapy with him (2 times a week for 5-10 weeks). They complimented him on his ability to learn. We had to actually ASK our pediatrician for a referral to this program because he did not think Jackson seemed like he needed additional treatment (while Jackson's "abnormalities" are quite mild we are glad we have resources such as these available in West Michigan). The therapists were fantastic and very thorough at evaluating Jackson (and he loved working with them - he didn't even cry, well, not until the end - he had about an hour workout! baby Pilate's :) Our next consultation is with a Craniofacial Surgeon (if you're thinking of a career change, this one must be in high demand as we only found 2 in Grand Rapids, neither of which is in our network - expensive second opinion for us, but priceless in the eyes of parents). This evaluation will be for his hematoma that has calcified (according to our pediatrician this hematoma is harmless). By no means are we complaining about any of Jackson's minor "issues." We are so blessed to have such a healthy baby - we really see how BLESSED we are when we see others with much larger disabilities, abnormalities, etc. We praise God for all he's given us as we PRAY for others going through struggles in life.
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1 comment:
God bless baby Jackson. My goodness, he is such a sweet little miracle. We will pray for these "baby pilates" sessions. Best of luck. Jackson is so lucky to have such wonderful parents!
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